Tuesday, 4 September 2012
Sunday, 22 January 2012
Dear Mr Direct Payments Financial Assessment Authority (Copy to Social Worker)
Monday, 9 January 2012
The Sky is Falling In (DLA and Benefits reform)
IF the sky were falling in that catastrophe would affect 100% of the population, including lazy and/or mendacious MPs, government ministers, bankers and other ankers, together with those readers of the daily 'popular' 'newspapers' (sic) who read inaccurate alarmist stories (yes, stories not facts) and think that those of us dependent on benefits are somehow taking advantage of the system, to their detriment. As if we had the spare energy to defeat the mighty machine of DWP/HMRC and all its tentacles.
Friday, 6 January 2012
While I sleep
Sunday, 25 December 2011
Christmas Day - Lunchtime
Saturday, 4 June 2011
Elderflower Cordial tweeked and without thunderbugs !
Tuesday, 31 May 2011
The grass is greener over the other side of the hedge, and the scents stronger, and this day she discovered that front paws on the low wall gave her a little height advantage. One evening, out for the last piddle, she began the tone of bark that was calling my attention to something, but I only had vision, not her scenting nose, so I could make nothing of it. The following morning's walk along the far bottom of that field brought us both into the scent line of a fox, and I'm sure that, at that point, she looked round and up at me, saying: Told You !
This bush flowered for the first time yesterday which, at the end of May, is a whole month earlier in the summer than when I took the photo at the end of June last year. Then the fresh dusty concrete wheelchair accessible path held little scent, but owl droppings under the oak tree were always worth a sniff.
High summer passed quickly in a succession of her first discovering and then eating wild strawberries, gooseberries, redcurrants and finally apples. The berries being carefully and daintily picked off the bushes within reach of her teeth, the high apples waiting for them to drop. First the green hard ones, just testing really to see if they were ready to eat as they fell, then testing her patience until they got bigger and tastier, finally the excitement of finding a new fall each morning and getting to them before I did. Daily walks became, for her, slow progressions, as I stopped the Tramper at each location of blackberries along the hedgerows, her views across the fields stopped by the by-now high maize crop, her quiet waiting rewarded with a handful of the gathered fruits.
Winter weather did not bother her and she shook off all attempts to put a waxed dog jacket on her back, even one memorable day when the temperature stayed at minus ten degrees centigrade all morning. That day I only managed to exercise her for twenty minutes on the Tramper down frozen lanes before I was seriously concerned at my fingers' chances of remaining attached to my palms. The gloves off just for a second to hand the camera to a passing villager who couldn't believe his eyes, never having seen a Tramper before.
During her retirement with me came something I hadn't expected, even though I'd had dogs before - the hound dialogue; over the months we passed from my use of words she was used to obeying (LEAVE IT !), onto her first days of learning: Go To Sleep; Toast !, and other such important information, through to one day I was thinking of calling her and she came back through the door and looked at me: asking, replying, as she did when I called her in the tone that was calling for fun, or an apple. What Mum ?
Tuesday, 24 May 2011
Cordial it is not - Elder is my favourite tipple
Thursday, 5 May 2011
Abused, Again, and too late for BADD
Sunday, 1 May 2011
Saturday, 23 April 2011
In the Blues
Friday, 25 February 2011
SCDS - Superior Semi-Circular Canal Dehiscence Syndrome
Sunday, 6 February 2011
Sally's Syndrome exists !
Wednesday, 19 January 2011
Friday, 14 January 2011
THE ECONOMICS OF BEING ALLOWED TO LIVE - Disability Living Allowance
Thursday, 6 January 2011
In the days before we knew ...
Some day technology will catch up with our differing unique individual peculiar impairments and our realities will become real in the medical dictionaries and there will be a relevant box to tick on the numerous forms to be filled. Then mine too will get written-up and recognised and when it does I would like it to be formally named as Sally's Syndome.
In the meantime, Onwards !
Friday, 31 December 2010
From That to This - Landlords - Good and Evil
Monday, 20 December 2010
CAROLS and FAIRY CAKES
Sunday, 21 November 2010
Sally sallies forth
Friday, 1 May 2009
Blogging Against Disablism Day 1st May 2009
Tuesday, 24 March 2009
The Things That I Can Think of That I Know
Thursday, 1 May 2008
Disablism Killed the Muse !
EDUCATION ~ EDUCATION ~ EDUCATION
How do you, as a person with an impairment, know what help is available to you, what society says you are entitled to in terms of help, equipment, services, an income, a life ?
If you are not living the life you know you could live, not getting the assistance (in all its forms) that you feel you should be getting, how do you feel ?
Negated ? Selfish ? Frustrated ? Fearful ? Depressed ? Embarrassed ? Resigned ? Forlorn ? Don't see the point in fighting, don't have the energy, the brain space to fight, can't fight for it, too ill, too impaired. Just exist, keep on keeping on, unable to resist the slow slide into worse the next day than it was the day before.
Where do you get the information ? who is going to educate, advocate, support, assist you - to reach that reachable goal - independence - so you are no longer dis-abled by society.
Through the snail-mail each month I receive Disability Now magazine, originating from the Scope organisation - "about cerebral palsy - for disabled people achieving equality." In this month's issue, is a printed insert, a quiz in which Scope invite readers - all readers not just the people they represent - to Take our Quiz to find out - "Are you in control of your life?". As I most definitely am NOT I thought YOU might NOT be either, so - if you want to complete the quiz online, go to http://www.scope.org.uk/disablism/audit where your input will enable their campaign. The statistics they gather from people who take the quiz they will use to: " tell politicians and policy makers what it is really like to be a disabled (sic ) (sic !) person."
Disablism is rife in the lack of education for dis-abled people about their rights, specific to their own central government's legislation and controlled by their own social health and care providers through local government. Repeat the mantra: It is not your impairment that disables you, but a dis-ablist society that does not take account of your impairment and provide you with the equipment or built environment to enable you to overcome the limits of your individual impairment. In other words - its not you its them !
How often do we think to ourselves - I can't do that / have that / be that - because I am disabled. How often can we rise above those negative thoughts to thinking - I am quite capable of doing that / having that / being that - if only I had the financial means / equipment / opportunity. Education is all. Those with the power may not have told you you can - do that / have that / be that - because it would spend their precious budget they assume they have control over. Education is often not provided to service users (us) by the social health and care providers (them) because they would loose control if we knew what they should be doing to assist us live the lives we should be living. Which leads me to my next rant ...
ADVOCACY ~ ADVOCACY ~ ADVOCACY
By this I mean proper professional trained independent funded Advocacy - not volunteers, not necessarily people who themselves have impairments - Advocacy that has the clout (think big wet cloth not fighting fists!) and that can force County Hall budget deciders and social services departments, to automatically provide to dis-abled people what central government has legislated should be provided so that people are no longer dis-abled in their impaired lives.
Disability Law Services, with advice, support and advocacy services, are available in some areas of the UK. Usually in cities, where there is a geographically concentrated client base, that makes the funding and setting up of such a service, with lawyers, advisers, advocates, with accessible buildings for their offices, awareness-raising publicity and advertising, all economically viable.
I dream of a Disability Law Service in all areas, that can deal robustly with legal issues, interpret legislation, and support, educate and advise dis-abled people and advocate for them. A service that has independence, that employs the independent trained professional people, that has the powers to ensure that providers of social care services comply with the law, with central government's guidance and legislation, on providing for the needs of dis-abled people, for their health, well being and social inclusion. Powerful stuff.
When I have the energy, when I have the disabled facilities and adaptations, when I have the time, when I am no longer fighting my own personal Good Fight, then the next fight, will be ensuring that Advocacy is available.
Did they think I would quietly go away happy once the Local Government Ombudsman has completed his investigation. They really don't have a clue. Unless they read it here first !
The Muse is not dead, merely resting, biding her time, and donating her services to the Good Fight.